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Rowhan

Member since Sep 2010 • Last active Mar 2019

Most recent activity

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    @Señor_Bear too late to claim whatever it was you were going to send me when I was in remission for all of 4 months? Sorry I never got in touch but life's been 1 squit short of a shower of shit

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    It is, but at this stage any chemo is just to "buy time" which could potentially be a decent amount of time..

    Problem is the previous timing of almost 3 years between relapses has been blown out of the water.
    Either the transplant chemo didn't wipe me clean which says "it" is now significantly more resistant to chemo, or my body isn't up to fighting it off for long now.

    I was only disease free, if at all, for 3 months this time so potential outlook is - chemo for a mi th next week, cell harvest for rad new immunology trial in the US. Then a transplant or sorts somewhere in england and 4 weeks under 24hr obs.

    Seems theres equal chances for the treatment to cure me, do nothing, or tear my body to pieces and attack all my organs.

    If it does nothing my only option going forward is chemo for as long as it's feasible / my body can take it / it actually has any effect

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    I relapsed sometime in January...
    Pet scan confirmed early last week
    Biopsy results tomorrow or tuesday should tell me how long I've got / what my chances are.

    I probably start palliative chemo in a week I expect

  • in General
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    I just came on here with some unfortunate news... then found out Bullheart had died.

    I thought things were bad enough already but this really is on another level :-(

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    I can't believe this... I just logged on to ask him how he was doing
    Oh man...

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    Cheers Señor Dov! - will message you as soon as I have a chance

    Thanks everyone else and sorry I was AFK for so long but the last ~4 months kicked the livimg shit out of me, strained my mind body and finances to absolute breaking point, nearly killed me and just to top it off cost me my relationship

    I've spent the last week starting up a youtube channel to start retrospectively documenting the last 6 years bit by bit. No experience of editing or recording (fuck me it's difficult with a 5yr old pc) and I'm struggling to talk clearly a lot of the time thanks to lasting radiotherapy symptoms but I'm hoping to properly find my stride and confidence and start making some really focused stuff on what the experiences have been like. Eventually I'll try making episodes on cancer like "How to" sort of stuff...

    But for now there's mainly just thoughts while I'm on the turbo and the latest episode it all got a bit emotional... also my editing skills (lack of) definitely show 🤣

    If anyone can give it a view I'd appreciate it. You might learn something or at the least get a bit of understanding about life with cancer. It's a work in progress anyway..

    https://youtu.be/qTwEf95z-ZI

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