@bothwell full sympathy here. I had a form of ME in my teens and it was hell. The good news is, please don't read the shit on the Internet. I found with my migraine it felt like a competition to see who was having a worse day than everyone else, and when i shared down positive news, got shot down.
People do recover from CFS, although time is the issue. My friend has recovered quiet well using a combination of diet and exercise. If you'd like me to put you in touch with her please let me know. (((Hugs)))